24 November 2006

Tania Update IV

The medical expenses at Okhmadyt for Tania's treatment are not an issue (per Mr. JH's commitment below). The CHOP specialists are continuing contact (and offering to do this indefinitely) with Okhmadyt regarding Tania and will recommend her travelling to CHOP if at any time they feel she could be treated better there.

Unfortunately, it looks like Tania, who is scheduled for another round of chemo-therapy in mid-December will not be going back to the hospital for treatment. The parents have decided to withdraw her from treatment.

We have received multiple emails from the doctors in the U.S. regarding Tania's withdrawal voicing their concern over this decision and urging us to convey to the family how important it is to continue. For example (from Dr. H.):
Dr.Z.C. let me know that she updated you today reconfirming results of our 11/14 consultation for Tetyana with oncologists at the Children's Hospital of Philadelphia (CHOP): Leukemia Team physician meeting, which consists of senior level leukemia experts from CHOP as well as members of the bone marrow transplant team, today also supported continued care as proposed by physicians in Kyiv. Please relay this to Tetyana's parents and family. We hope that this will help Tetyana's parents and family find comfort and confidence in the care that Tetyana is receiving in Kyiv and to allow this care to resume as soon as possible to minimize any potential consequences of abruptly and prematurely stopped chemotherapy.

We have discussed all of the above with the family and we are hoping for Tania's parents to change their minds before it is too late.


The Ranger said...

I read this earlier and had to come back and read it again to believe what I was reading. Why are the parents keeping this child from getting more treatment. My father was a survivor of this disease as was my grand father. It can be treated and she can and will live a good life if the treatments are given. This is very sad . I will say a prayer for this child and all that care for her.

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